Today is celebrated as world Parkinson’s day, and the SSNMC hospital organized an awareness program for Parkinson patients.
By Thanuja. M
Bengaluru, April 11, 2019
The SSNMC Super Specialty Hospital, in association with Basal Ganglia support group, organized a program to bring awareness about Parkinson’s disease. The motto for the program was ‘Empowering the Caregivers’.
Parkinson is a disease that affects the motor function of an individual, and gradually, the patient is unable to walk, talk or eat properly, as their body experience tremors most of the time.
Dr N.K. Venkataramana, the head of the Brains Centre in the same hospital said, “We at Brains want to create a community to bring awareness in the society about the disease. We bring awareness through a magazine called ‘Brain voice’ and by creating YouTube videos.
Our ultimate aim is to identify as many Parkinson patients as possible and provide comprehensive data about the number of patients.
The price of the medicines used to treat the disease is really high, as they need to take medicines every couple of hours. So for the patients, we have formed a collaborative with Sun Pharma to give medicines at a subsidized rate of 30% from the regular amount.”
He added that medicines alone will not cure the disease. Proper diet with exercise and support from the family is very much needed to help overcome the disease, as Parkinson is not completely curable.
Patients who are in their early stages spend around Rs. 2,000 to Rs. 3,000 per month. In their final stage, the cost can reach as much as Rs. 30,000.
In a door-to-door survey conducted in 2004 in Bangalore, it was found that the prevalence rate of the disease was 76 per 1,00,000 population. But in rural areas, the prevalence rate of the disease is found to be high, as many people are not aware of.
Another issue that patients face is that there are no government schemes which will support them financially for the treatment.
Dr E.V. Joshy at NIMHANS said, “The main reason this disease is caused is due to the formation of a chemical called dopamine in the brain. The disease is diagnosed by looking at an individual, not by taking scan or MRI. The patients suffering from the disease take a lot of medicines. One of the most prominent medicines is Syndopa. But Syndopa taken in a large amount causes hallucinations and leads to psychosis. So, patients should reduce the usage of medicines and try to do more exercise to control the disease. Thus, parkinsonism is like finding colour in a world of grey.”